# Just Inclusion and Equity: Negotiating Community-Research Partnerships in Genomics Research (JUSTICE)

> **NIH NIH R01** · COLUMBIA UNIVERSITY HEALTH SCIENCES · 2024 · $737,573

## Abstract

PROJECT SUMMARY
New initiatives in global genomics research escalate the urgency of questions of just inclusion and equitable
practice of science. To address these challenges, explicit framings of justice and equity are required to move
beyond ambiguous and inconsistent policies and approaches, and anchor greater transparency in
negotiations between different stakeholders. Additionally, the increasingly global and multi-institutional
nature of genomics research requires understanding of the multiple legal, regulatory, and institutional
ecosystems that condition the possibilities for equitable partnership and benefit-sharing with participants and
communities. Building on Nancy Fraser’s framework of justice that focuses on recognition, representation,
and redistribution, we explore the complex, multi-level nature of barriers to equity in genomics research with
particular attention to the influence of legal and institutional infrastructures on issues such as study
governance, benefit sharing, data control, and ownership. This proposal builds on our research of the pursuit
of diversity in precision medicine research, where we found that institutional practices constrain possibilities
for benefits and create challenges for equitable partnerships in genomics research seeking to engage
historically underrepresented populations. We seek to contribute to a conceptual understanding of the
principle of justice, empirical possibilities for its realization in the equitable distribution of benefits, and
practical implications for research institutions and infrastructure. To achieve these objectives, we will: 1)
examine facilitators and barriers to negotiating agreements between research institutions and communities
around justice, benefit, and equity in genomics research by investigating (a) legal, regulatory, commercial,
and ethical frameworks and policies, and (b) stakeholder perspectives on and experiences with negotiations
of agreements; and 2) use a stakeholder-engaged process to develop resources to identify points of
negotiation for equitable and just partnerships between communities and research institutions.

## Key facts

- **NIH application ID:** 10910148
- **Project number:** 5R01HG012841-02
- **Recipient organization:** COLUMBIA UNIVERSITY HEALTH SCIENCES
- **Principal Investigator:** Shawneequa Callier
- **Activity code:** R01 (R01, R21, SBIR, etc.)
- **Funding institute:** NIH
- **Fiscal year:** 2024
- **Award amount:** $737,573
- **Award type:** 5
- **Project period:** 2023-09-01 → 2027-06-30

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/10910148

## Citation

> US National Institutes of Health, RePORTER application 10910148, Just Inclusion and Equity: Negotiating Community-Research Partnerships in Genomics Research (JUSTICE) (5R01HG012841-02). Retrieved via AI Analytics 2026-05-24 from https://api.ai-analytics.org/grant/nih/10910148. Licensed CC0.

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