# Developing a Scalable FASD-Informed Person-Centered Planning Intervention

> **NIH NIH R61** · UNIVERSITY OF ROCHESTER · 2024 · $286,155

## Abstract

Project Summary/Abstract
People with fetal alcohol spectrum disorders (FASD) experience barriers to care and a lower quality of life (QOL). FASD-
informed services and supports are lacking, especially during the transition to adulthood – a critical developmental period
for QOL. The proposed project will develop and initiate testing of a scalable person-centered planning (PCP) intervention
to support QOL for adolescents and adults with FASD. PCP is an evidence-based intervention for people with disabilities.
Research suggests PCP is a good fit FASD; however, it has yet to be adapted or tested with this population. In this project,
we will use rigorous implementation science frameworks to systematically adapt and test a PCP intervention for
adolescents and adults with FASD. Given the importance of social support networks in PCP, we will also draw upon the
growing literature and team expertise on social network interventions to inform the development and evaluation of the
intervention. Consistent with other interventions in our lab, we expect the proposed intervention to leverage technology to
offer scalable solutions to overcome current barriers to care. During the R61 phase of the project, we will use the
implementation science framework “Intervention Mapping – Adapt” to carefully adapt the core principles and methods of
PCP and social network interventions for FASD. This 6-step process involves a planning team of people with FASD and
other stakeholders and careful attention to theory and logic models to guide adaptation decisions. Based on our
preliminary logic models, self-determination theory is a strong fit with the proposed intervention that we are currently
calling “Thrive.” Additional research activities in Aim 1 will also inform the planning group’s decision making as they
refine logic models, determine intervention structure and components, develop materials, and finalize evaluation
procedures. Specifically in Aim 1a, we will conduct individual and group interviews with adolescents and adults with
FASD and members of their social networks to characterize key features of their support networks that may be amenable
to intervention. Following initial production of intervention materials, we will complete two rounds of usability testing (5
participants per round) in Aim 1b to aid in refining intervention materials and evaluation procedures for the pilot
randomized controlled trial (RCT) in the R33 phase. Following successful attainment of R61 milestones, we will conduct
a type 1 hybrid effectiveness-implementation pilot RCT of the developed Thrive intervention (R33). This trial design
involves gathering data on both effectiveness and implementation outcomes, which will help us optimize the intervention
for future larger-scale trials and more rapid translation into community settings. We will recruit 60 adolescents and adults
(ages 15-30) with FASD to participate in the pilot RCT, with random assignment to the 1) Thrive PCP intervention or 2)
...

## Key facts

- **NIH application ID:** 10929943
- **Project number:** 5R61AA030780-02
- **Recipient organization:** UNIVERSITY OF ROCHESTER
- **Principal Investigator:** CHRISTIE Lynn McGee Petrenko
- **Activity code:** R61 (R01, R21, SBIR, etc.)
- **Funding institute:** NIH
- **Fiscal year:** 2024
- **Award amount:** $286,155
- **Award type:** 5
- **Project period:** 2023-09-20 → 2025-09-09

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/10929943

## Citation

> US National Institutes of Health, RePORTER application 10929943, Developing a Scalable FASD-Informed Person-Centered Planning Intervention (5R61AA030780-02). Retrieved via AI Analytics 2026-05-25 from https://api.ai-analytics.org/grant/nih/10929943. Licensed CC0.

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