# Understanding and Improving Healthcare Decision-Making and Outcomes for People Living with Alzheimer's Disease and Related Dementias

> **NIH NIH P01** · NATIONAL BUREAU OF ECONOMIC RESEARCH · 2024 · $3,185,633

## Abstract

OTHER PROJECT INFORMATION – Project Summary/Abstract
Understanding and Improving Healthcare Decision-Making and Outcomes for People Living with
Alzheimer's Disease and Related Dementias
This Program Project analyzes and seeks to improve healthcare practice patterns, decision-making processes,
and treatment effectiveness for patients with Alzheimer’s disease and related dementias (ADRD). Supported by
a set of cores that draw together clinical and economic expertise, vast novel data sources, and cutting-edge
analytical tools, the component projects focus on the particular decision-making challenges faced by providers,
caregivers, and patients in caring for the complex needs of people living with ADRD and the role these play in
driving disparities in access and outcomes. There are unique aspects, potential barriers, and disparities in how
healthcare systems provide healthcare to people with ADRD, as these patients may be less capable of describing
their symptoms and health histories, or following through on medical recommendations, and they may rely
substantially on formal and informal caregivers in navigating healthcare services. We seek to understand and
improve healthcare decision-making and outcomes for patients with these complex needs.
The Program’s component research projects address influences on healthcare decisions, and their impact on
outcomes and disparities, across a set of health conditions and settings. We deploy innovative machine learning
methods both to characterize patients’ needs and treatment patterns and to build tools that can assist physicians
with patient diagnostics, even when patients’ communication of their symptoms and health histories may be
limited. We examine the factors that affect both provider and patient decision-making, including pressured
decision-making environments such as Emergency Departments, patient-provider race, administrative burdens
on patients and caregivers such as complex insurance rules, provider incentives, and providers’ patient caseload
and fatigue in influencing healthcare delivery and health outcomes for patients with ADRD. Integrative support
for the Program Project is advanced through three cores that provide common infrastructure, data, and expertise
needed by the projects, and to ensure that they work synergistically and seamlessly as a cohesive program.

## Key facts

- **NIH application ID:** 10934394
- **Project number:** 2P01AG005842-35A1
- **Recipient organization:** NATIONAL BUREAU OF ECONOMIC RESEARCH
- **Principal Investigator:** Katherine Baicker
- **Activity code:** P01 (R01, R21, SBIR, etc.)
- **Funding institute:** NIH
- **Fiscal year:** 2024
- **Award amount:** $3,185,633
- **Award type:** 2
- **Project period:** 1997-02-01 → 2029-08-31

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/10934394

## Citation

> US National Institutes of Health, RePORTER application 10934394, Understanding and Improving Healthcare Decision-Making and Outcomes for People Living with Alzheimer's Disease and Related Dementias (2P01AG005842-35A1). Retrieved via AI Analytics 2026-05-25 from https://api.ai-analytics.org/grant/nih/10934394. Licensed CC0.

---

*[NIH grants dataset](/datasets/nih-grants) · CC0 1.0*