Alzheimer's Disease and Related Disorders Treatment and Outcomes in America: Changing Policies and Systems.

NIH RePORTER · NIH · P01 · $2,878,793 · view on reporter.nih.gov ↗

Abstract

PROJECT SUMMARY The complex health care needs, poorer outcomes, high spending, and sociodemographic composition of the population living with Alzheimer's Disease and Related Dementias (ADRD) pose serious challenges to families, providers, and health systems and have important implications for health equity. Although the population living with ADRD is expected to triple by 2050, many recent policy changes aim to maximize the value of care for the “average” patient, without specific consideration of their consequences for high-cost, high- need populations, such as those with ADRD. The P01 project will undertake four synergistic projects testing the effect of recent national policies and payment changes on persons with ADRD in different states of disease progression, in different care settings, and exposed to different policies. Project 1 seeks to determine the effects of Medicare Advantage (MA) contract terminations on outcomes for enrollees with ADRD. Project 2 examines the impact of a federal policy to suspend Medicaid redeterminations on health outcomes for people with ADRD. Project 3 evaluates the impact of the MA Hospice Carve-In policy on end-of-life care for persons with ADRD. Finally, Project 4 evaluates the impact of a home health payment change on access and outcomes of patients with ADRD. Each project aims to understand differential effects of financing and payment policies among persons with ADRD by race, ethnicity and socioeconomic status and/or focus the analysis on patients with low income or other social risk factors. All projects rely upon the Primary Data Collection and Partner Engagement Core (Core B) and the Data Management and Methods Core (Core C). Core B uses qualitative methods to gather perspectives from healthcare providers, payers, care partners, and persons living with ADRD themselves. This will generate critical information about how organizations interact to enact policies and implement practices that affect healthcare choice, access, use, and outcomes for persons with ADRD. Core C will make important contributions on three key challenges related to health policy research in ADRD: (1) accurately identifying the presence of dementia among enrollees in MA plans, (2) developing novel approaches for causal inference study designs in the aftermath of large-scale shocks stemming from the COVID-19 pandemic, and (3) integrating data across multiple payers, and institutional and community-based care. Our robust dissemination plan includes updating and maintaining http://www.ltcfocus.org, a web-site designed for federal and state policy makers and news media with health and aging interests; and working with our Strategic Partner Engagement Panels and National Advisory Committee to maximize the impact and relevance of our findings. Our project will provide timely, novel and rigorous evidence about the impact of recent payment and financing policy changes for persons living with ADRD and inform policies that improve care and promo...

Key facts

NIH application ID
10934964
Project number
2P01AG027296-16
Recipient
BROWN UNIVERSITY
Principal Investigator
AMAL N. TRIVEDI
Activity code
P01
Funding institute
NIH
Fiscal year
2024
Award amount
$2,878,793
Award type
2
Project period
2007-09-15 → 2029-05-31