Addressing Structural Disparities for Children with Early Communication Disorders (ASCEND)– Diversity Supplement

NIH RePORTER · NIH · R01 · $36,626 · view on reporter.nih.gov ↗

Abstract

PROJECT SUMMARY Communication disorders (CDs) have long-term impacts on young children and can exacerbate health inequities in marginalized communities, especially for American Indian and Alaska Native (AI/AN) children who have experienced historical trauma. Dr. Joshuaa Allison-Burbank, a member of the Navajo Nation and Acoma Pueblo, aims to become an independent developmental scientist who conducts rigorous mixed-methods research with AI/AN children with CDs. He aims to investigate the language development of young AI/AN youth and how to best support positive developmental trajectories and mental health while responding to the harmful effects of structural racism that exists in early childhood programs. CDs are conditions causing difficulty producing or understanding speech and/or language, including autism spectrum disorder, hearing impairment, and primary developmental speech and language disorders, and are the most prevalent class of disability in early childhood, affecting about 1 in 5 children before age 6. As communication skills are essential to academic and social-emotional development, CDs in early childhood are consistently linked to long-term costs to health and well-being. Therefore, it is vital that CDs be addressed early in childhood to foster healthy developmental trajectories for young children from communities that experience disproportionate health inequities. Aligning with the purpose of PA-21-071, this diversity supplement builds on research from the parent award, Project ASCEND, to specifically explore inequities in federally funded IDEA (Individuals with Disabilities Education Act) Part C early intervention (EI) systems, specifically for AI/AN children. This diversity supplement aims to identify and disrupt sources of structural inequity (e.g., differential referral, historical trauma, racism, and funding limitations) in early care for AI/AN children with CDs to provide solutions that improve equity in EI programs, and support child and family health outcomes. This supplement's goal will be to evaluate aggregated data on AI/AN families utilizing IDEA Part C systems' data and interviews with AI/AN families and providers serving AI/AN families to identify actionable steps in EI where inequity can be disrupted. In addition, there is limited data on how AI/AN families who live on tribal lands specifically are accessing and experiencing EI programs. Understanding how AI/AN families are navigating EI systems on tribal lands can help us to better understand the unique sociocultural factors that influence developmental outcomes of young AI/AN children. Most critical is addressing CDs in AI/AN families where the incidence of CDs is high. Our analysis will determine how access to community resources and geographic factors can influence provision of EI services for AI/AN families, which can help the research team to address structural factors that impact access to EI services through research and advocacy. This mixed methods study inc...

Key facts

NIH application ID
10999861
Project number
3R01DC020402-02S1
Recipient
OREGON HEALTH & SCIENCE UNIVERSITY
Principal Investigator
Lauren M. Cycyk
Activity code
R01
Funding institute
NIH
Fiscal year
2024
Award amount
$36,626
Award type
3
Project period
2024-04-01 → 2026-05-31