Just Inclusion and Equity: Negotiating Community-Research Partnerships in Genomics Research (JUSTICE)

NIH RePORTER · NIH · R01 · $164,087 · view on reporter.nih.gov ↗

Abstract

PROJECT SUMMARY Centering justice in bioethics is critical to promoting research on the ethical and equitable development and deployment of emerging biotechnologies. Building capacity for more effective and relevant bioethics requires not only engagement with multidisciplinary scholarship but also scholars historically underrepresented in bioethics and in other disciplines and adjacent fields. Few mechanisms exist for supporting sustained and substantive dialogue on justice and applying frameworks to real-world efforts in the development and deployment of biotechnologies. This project addresses this gap by creating a mechanism for trainees across disciplines to engage ethical frameworks that focus on justice and equity, and to develop an academic network in bioethics. Our proposal aims to build capacity in bioethics research through sustained and systematic multidisciplinary explorations, dialogues, and the development of educational materials on justice frameworks. To achieve these objectives, we have two objectives: 1) to create a hybrid series “Justice Dialogues” a virtual monthly series that will feature speakers whose scholarship focuses on justice theories and frameworks, and convene scholars from disciplines beyond bioethics, such as science, technology and society studies, gender and ethnic studies to engage theories and frameworks of justice and their applications in research of the development and deployment of biotechnologies, including in genomics, AI, and precision medicine; and 2) to develop and disseminate educational resources to train scholars and scientists to engage research questions of justice in the ethical and equitable development and deployment of emerging biotechnologies through a publicly accessible website dedicated to disseminating recordings of didactic presentations, synchronous group discussions, curated literature collections and other related resources.

Key facts

NIH application ID
11064335
Project number
3R01HG012841-02S1
Recipient
COLUMBIA UNIVERSITY HEALTH SCIENCES
Principal Investigator
Shawneequa Callier
Activity code
R01
Funding institute
NIH
Fiscal year
2024
Award amount
$164,087
Award type
3
Project period
2023-09-01 → 2027-06-30