# University of Utah Center of Excellence in ELSI research (UCEER)

> **NIH NIH RM1** · UTAH STATE HIGHER EDUCATION SYSTEM--UNIVERSITY OF UTAH · 2024 · $109,589

## Abstract

PROJECT SUMMARY
This application is for renewal of funding for the Utah Center of Excellence in ELSI Research (UCEER). Our
Center has received funding under a P20 grant from 2014 – 2016 and under an RM1 grant from 2016 – 2020.
UCEER is primarily focused on ELSI issues in population-based genetic testing and screening. For the current
funding cycle, UCEER has had a strong emphasis on newborn screening, prenatal screening and carrier
screening. For this renewal, we propose extending this focus to also address issues with genetic disabilities,
including cost- effectiveness of treatments, adaptation and support within families and the community, and
legal/policy issues. In addition, we propose to address issues arising from population-based heritage testing
by direct to consumer genetic testing companies. We propose to maintain a robust set of efforts to involve
faculty from a broad range of disciplines and students from the undergraduate to post-doc levels. UCEER has
received a R25 award from NHGRI, linked to our RM1 funding, that supports undergraduate and graduate
students who identify with a disability. UCEER has developed an efficient administrative structure and
processes and a strong group of staff to support our research and educational programs.

## Key facts

- **NIH application ID:** 11090190
- **Project number:** 3RM1HG009037-08S1
- **Recipient organization:** UTAH STATE HIGHER EDUCATION SYSTEM--UNIVERSITY OF UTAH
- **Principal Investigator:** ERIN ROTHWELL
- **Activity code:** RM1 (R01, R21, SBIR, etc.)
- **Funding institute:** NIH
- **Fiscal year:** 2024
- **Award amount:** $109,589
- **Award type:** 3
- **Project period:** 2016-05-16 → 2025-05-31

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/11090190

## Citation

> US National Institutes of Health, RePORTER application 11090190, University of Utah Center of Excellence in ELSI research (UCEER) (3RM1HG009037-08S1). Retrieved via AI Analytics 2026-05-22 from https://api.ai-analytics.org/grant/nih/11090190. Licensed CC0.

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