# Administrative Supplement: Assessing and Enhancing Survivorship Care

> **NIH NIH P30** · EMORY UNIVERSITY · 2024 · $99,935

## Abstract

EXPOSURE: Project Summary/Abstract
This application is being submitted in response to the Notice of Special Interest (NOSI) identified as "NOT-CA-
24-041". Although engagement in long-term follow-up survivor care is critical to the lifelong health of the
growing childhood cancer survivor (CCS) population, >25% of CCS are not accessing survivor care nationally.
Understanding the factors impacting the landscape of pediatric survivor care (e.g., institutional uptake of
standards, population reach, patient engagement) may reduce gaps in care delivery for CCS. It is crucial to
engage CCS and their families in survivor care early to begin surveillance and educate young CCS about their
risks. Strong engagement in survivor care of young CCS is required to support CCS in lifelong survivor care.
The objectives of this supplement to the Winship Cancer Institute's NCI-designated P30 Cancer Center grant
are to examine: 1) alignment of the care offered to pediatric CCS with the National Standards for Survivorship
Care, 2) the long-term utilization of pediatric survivor services, and 3) patient- and family-level factors related to
long-term engagement in survivor care. We propose a mixed-method study that includes qualitative interviews
with pediatric providers, a retrospective chart review of a cohort of CCS patients, and secondary analyses of
patient-reported outcome (PRO) data from CCS caregivers. Specifically, we aim to: Examine the institutional
uptake of survivor services aligned with the National Standards for Survivorship Care offered in the Aflac
Pediatric Cancer Survivor Program (Aim 1), Evaluate the reach of the Aflac Pediatric Cancer Survivor Program
(Aim 2), and Identify patient-, caregiver- and family-level factors related to engagement in pediatric survivor
care over time (Aim 3). In Aim 1, we will conduct qualitative interviews with N=15 local pediatric oncology and
survivor care providers focused on the health system policies, processes, and evaluation methods used in the
Aflac Pediatric Cancer Survivor Program. In Aim 2, we will use an existing cohort of pediatric oncology patients
(<18 years) who became eligible for initial survivor services in 2016-2019 (N=284) and extract medical record
data to determine the proportion and representativeness of CCS who participated in survivor clinic visits and
recommended surveillance for late effects longitudinally over a five-year period. In Aim 3, we will use a subset
of the Aim 2 cohort with PRO data available (N=138) to evaluate the impact of familial psychosocial
functioning, CCS quality of life, caregiver health, knowledge of late-effects risks, and health beliefs during the
off-therapy period on future engagement in survivor care services. Study results will be used to: 1) inform
organizational improvements to support pediatric CCS at the Winship Cancer Institute, 2) develop a toolkit to
help other pediatric cancer centers assess and address gaps in survivor care, and 3) design interventions to
imp...

## Key facts

- **NIH application ID:** 11104105
- **Project number:** 3P30CA138292-15S2
- **Recipient organization:** EMORY UNIVERSITY
- **Principal Investigator:** Suresh S Ramalingam
- **Activity code:** P30 (R01, R21, SBIR, etc.)
- **Funding institute:** NIH
- **Fiscal year:** 2024
- **Award amount:** $99,935
- **Award type:** 3
- **Project period:** 2009-04-07 → 2028-03-31

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/11104105

## Citation

> US National Institutes of Health, RePORTER application 11104105, Administrative Supplement: Assessing and Enhancing Survivorship Care (3P30CA138292-15S2). Retrieved via AI Analytics 2026-05-26 from https://api.ai-analytics.org/grant/nih/11104105. Licensed CC0.

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