# Understanding and Planning Donation Information Needs of Asian American Communities

> **NIH NIH R01** · TEMPLE UNIV OF THE COMMONWEALTH · 2020 · $158,497

## Abstract

PROJECT SUMMARY
The parent R01 is identifying the attitudes and beliefs about organ donation among Asian
Americans, which will substantially add to our currently sparse knowledge base of this
population’s organ donation preferences despite its elevated transplantation needs. The final
aim of the parent study is to create a culturally tailored intervention to raise awareness about
organ donation among Asian Americans and to increase their rates of pre-designation as organ
donors.
Informed by data collected through the parent grant, the proposed supplement will examine how
Asian Americans’ understandings of autonomy impact decision-making around organ donation
and healthcare. The data collected through the parent study indicate that the healthcare
decision-making process among Asian Americans is inconsistent with Western notions of
autonomy, which place primacy on self-determination and individual preferences. For the
proposed supplement, we will re-analyze existing focus group data using a narrative analysis
approach. We will also develop a series of organ donation vignettes to conduct 30 in-depth
qualitative interviews with Asian Americans. The expected findings will expand our
understanding of Asian Americans’ decision-making about organ donation, elucidate the role of
autonomy in this process, and inform the development of the intervention planned under the
parent grant. The supplement’s findings may also have considerable implications on how to
encourage Asian Americans’ enrollment on online donor registries and authorization of
surrogate donation in hospital settings.

## Key facts

- **NIH application ID:** 9929366
- **Project number:** 3R01DK114881-03S1
- **Recipient organization:** TEMPLE UNIV OF THE COMMONWEALTH
- **Principal Investigator:** LAURA A. SIMINOFF
- **Activity code:** R01 (R01, R21, SBIR, etc.)
- **Funding institute:** NIH
- **Fiscal year:** 2020
- **Award amount:** $158,497
- **Award type:** 3
- **Project period:** 2019-07-01 → 2020-06-30

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/9929366

## Citation

> US National Institutes of Health, RePORTER application 9929366, Understanding and Planning Donation Information Needs of Asian American Communities (3R01DK114881-03S1). Retrieved via AI Analytics 2026-05-23 from https://api.ai-analytics.org/grant/nih/9929366. Licensed CC0.

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