# Evaluating the Effectiveness of an Online Small-Group Self-Management Workshop for Rural Caregivers of Individuals with Alzheimer Disease and Related Dementias

> **NIH NIH R01** · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · 2020 · $793,239

## Abstract

PROJECT SUMMARY
 Among 13 million informal caregivers of individuals with Alzheimer's disease or related dementias, an
estimated 1.4 million live in rural areas of the US. These caregivers are a vulnerable group due to their
physical isolation and well-documented rural disparities in health care access and quality. Many rural dementia
caregivers experience serious health consequences due to caregiving responsibilities that can limit their ability
to maintain their caregiving role. Thus, there is an pressing need for effective, scalable, and accessible
programs to support rural dementia caregivers so that they can sustain their own well-being and effective
caregiving within the home environments of their loved ones.
 Online programs offer a convenient and readily translatable option for program delivery because they
can be accessed by caregivers in the home environment and at the convenience of the user. Building Better
Caregivers is an online 6-week, interactive, small-group self-management, social support, and skills-building
workshop developed for caregivers of individuals with Alzheimer's disease or related forms of dementia. In our
evaluations of the program in non-randomized studies, caregivers experienced significant improvements in
stress, depression symptoms, and self-efficacy and partners experienced improved well-being.
 Building on these encouraging preliminary findings, we now propose to conduct a hybrid effectiveness-
implementation randomized controlled trial that will enroll and randomize 640 rural dementia caregivers into
two groups: 320 in the intervention (workshop) group and 320 in the attention control group. Caregivers will be
recruited through 19 community organizations (serving rural communities in 17 states). Primary outcomes will
be caregiver stress and depression symptoms. We hypothesize that stress scores and depression symptoms
will be significantly improved at 12 months in the intervention group versus control group. We will also identify
key strengths (facilitators) and weaknesses (barriers) of workshop implementation. We will use the RE-AIM
implementation framework and a mixed methods approach to identify implementation characteristics pertinent
to both caregivers and rural community organizations.
 If the Building Better Caregivers workshop is proven to be effective, this research has the potential to
open new research horizons, particularly on how to reach and effectively support isolated dementia caregivers
in rural areas with an intervention that is scalable, even in low-resourced settings. If the workshop can achieve
its goals with rural dementia caregivers, some of those most isolated, it would also be expected to be scalable
in other low-resourced settings (e.g., in urban or suburban environments).

## Key facts

- **NIH application ID:** 9939435
- **Project number:** 5R01AG057855-03
- **Recipient organization:** UNIVERSITY OF CALIFORNIA, SAN FRANCISCO
- **Principal Investigator:** Veronica Yank
- **Activity code:** R01 (R01, R21, SBIR, etc.)
- **Funding institute:** NIH
- **Fiscal year:** 2020
- **Award amount:** $793,239
- **Award type:** 5
- **Project period:** 2018-09-30 → 2023-05-31

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/9939435

## Citation

> US National Institutes of Health, RePORTER application 9939435, Evaluating the Effectiveness of an Online Small-Group Self-Management Workshop for Rural Caregivers of Individuals with Alzheimer Disease and Related Dementias (5R01AG057855-03). Retrieved via AI Analytics 2026-05-23 from https://api.ai-analytics.org/grant/nih/9939435. Licensed CC0.

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