# Implementation of Medical Homes for Evidence Based Care of Adolescents and Adults with Sickle Cell Disease

> **NIH NIH U01** · AUGUSTA UNIVERSITY · 2020 · $912,872

## Abstract

PROJECT SUMMARY
Life expectancy for patients with sickle cell disease (SCD) has increased from teens to late
forties over the last 30 years. The increase in the number of adults with the disease has created
new unmet needs, due to the heavy disease burden and organ damage which increase with
age. This is confounded by the inability of the health care system to adequately meet the needs
of this population, and thus has resulted in disparities and increase in health care costs. This
project attempts to address these problems by creating medical homes and medical
neighborhoods in four different settings throughout rural Georgia, which has the fourth largest
population of patients with SCD in the country. This will be achieved by building on the GRU
Sickle Cell Center's experience in taking care of SCD patients through its outreach clinics, and
more recently through its partnership with primary care practices and Hematology/Oncology
practices at different locations in the state. In the first two years of the project (Phase I) a needs
assessment of patients, communities, and providers will be carried out and a Community
Advisory Council will be established. The results of this needs assessment will be used to
develop and implement interventions to establish medical homes and neighborhoods to improve
evidence-based care for SCD patients in Phase II.

## Key facts

- **NIH application ID:** 9962471
- **Project number:** 5U01HL134004-05
- **Recipient organization:** AUGUSTA UNIVERSITY
- **Principal Investigator:** Robert William Gibson
- **Activity code:** U01 (R01, R21, SBIR, etc.)
- **Funding institute:** NIH
- **Fiscal year:** 2020
- **Award amount:** $912,872
- **Award type:** 5
- **Project period:** 2016-08-05 → 2022-06-30

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/9962471

## Citation

> US National Institutes of Health, RePORTER application 9962471, Implementation of Medical Homes for Evidence Based Care of Adolescents and Adults with Sickle Cell Disease (5U01HL134004-05). Retrieved via AI Analytics 2026-05-23 from https://api.ai-analytics.org/grant/nih/9962471. Licensed CC0.

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