# Center on the Ethics of Indigenous Genomic Research

> **NIH NIH RM1** · UNIVERSITY OF OKLAHOMA · 2020 · $939,294

## Abstract

Summary
American Indian and Alaska Native concerns about genomics are well documented, but are sadly all too often
still not adequately addressed. This continues to compromise participation in genomics by Indigenous
Americans. There are substantial opportunities to change these dynamics by investing in community-led
research on ethical, legal, and social implications, but this requires a concerted effort to build the infrastructure
for this work, both in the academy and in the community. In our first four years of funding, the Center on the
Ethics of Indigenous Genomic Research has created a consortium in which tribal research enterprises have
jointly led research and training with faculty, staff, and students from the University of Oklahoma. In the next
phase of this funding, we seek to build on this foundation to bring new partners into the research community,
generating momentum for new American Indian and Alaska Native genomic research. We have three specific
aims:
1) to extend a network of AI/AN communities leading empirical ELSI research
 a) to advance dialogue on genomic research, biobanking, and data sharing in Oklahoma specifically
 b) to stimulate work in new communities nationally through a pilot research program
2) to advance thinking about current ELSI concerns in AI/AN communities
 a) by working with community partners to identify unresolved ELSI questions
 b) by convening academic and community partners to advance scholarship in these areas
3) to train the next generation of leaders for AI/AN ELSI research
 a) through ongoing integration with the University of Oklahoma’s NHGRI Diversity Action Plan R25
 b) through a postdoctoral fellowship program
 c) through a program to develop and support community research leaders
We expect to emerge from this final phase of CEER funding with a network of community- and university-
based researchers and an academic center at the University of Oklahoma capable of supporting the next
generation of American Indian and Alaska Native ELSI research.

## Key facts

- **NIH application ID:** 9982641
- **Project number:** 2RM1HG009042-05
- **Recipient organization:** UNIVERSITY OF OKLAHOMA
- **Principal Investigator:** Denise A Dillard
- **Activity code:** RM1 (R01, R21, SBIR, etc.)
- **Funding institute:** NIH
- **Fiscal year:** 2020
- **Award amount:** $939,294
- **Award type:** 2
- **Project period:** 2016-09-01 → 2024-06-30

## Primary source

NIH RePORTER: https://reporter.nih.gov/project-details/9982641

## Citation

> US National Institutes of Health, RePORTER application 9982641, Center on the Ethics of Indigenous Genomic Research (2RM1HG009042-05). Retrieved via AI Analytics 2026-05-23 from https://api.ai-analytics.org/grant/nih/9982641. Licensed CC0.

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