Study of Quality of Life in Freeman-Sheldon Syndrome and Related Conditions

Stopped Most study procedures incorporated into NCT01144741, some in NCT01306994

Conditions

• Arthrogryposis
• Craniofacial Abnormalities
• Posttraumatic Stress Disorder
• Depressive Disorder

Interventions

• OTHER: PTSD Checklist-Specific
• OTHER: Modified Flanagan Quality of Life Scale
• OTHER: Center for Epidemiologic Studies Depression Scale
• OTHER: Functional Enquiry Form
• OTHER: Strength, Joint ROM, Girth and Length Measurements
• OTHER: Study Physical Examination
• OTHER: PTSD, Depression, and FSS-Focused Examination
• OTHER: Freeman-Sheldon Specific Quality of Life Survey
• OTHER: Lactate, Glucose, and Adenosine Triphosphate Blood Levels

Sponsor

Freeman-Sheldon Research Group, Inc.