Lymphatic Anomalies Registry for the Assessment of Outcome Data

Conditions

• Lymphatic Malformation
• Generalized Lymphatic Anomaly (GLA)
• Central Conducting Lymphatic Anomaly
• CLOVES Syndrome
• Gorham-Stout Disease ("Disappearing Bone Disease")
• Blue Rubber Bleb Nevus Syndrome
• Kaposiform Lymphangiomatosis
• Kaposiform Hemangioendothelioma/Tufted Angioma
• Klippel-Trenaunay Syndrome
• Lymphangiomatosis

Sponsor

Boston Children's Hospital

Collaborators

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